National PKU News: State Laws and Policies

State Laws and Policies

This list includes laws and policies known to National PKU News and is not a comprehensive list. It does include all laws passed since 1994. Information about policies in some states is incomplete.

We would be delighted if people would send us information about the situation in their state, correct us if any of this information is incorrect, and add missing information! We hope to keep this list as updated as possible, for the benefit of everyone. Please write to: National PKU News, 6869 Woodlawn Ave. NE #116, Seattle, WA 98115. E-mail: schuett@pkunews.org .

Bill/Date Adopted Diet Coverage Coverage Metabolic Disorders Limitations

State Formula Foods State Insurance PKU Others $ for food, per person Age (years)

Alabama No¹⁹ No No No NA NA NA NA

Alaska SB 313/May 91 Yes No No Yes Yes No NA No

Arizona HB 2043/April 00 Yes Yes No Yes Yes Select 50% up to $5000 No

Arkansas HB 183/April 99 Yes Yes No Yes Yes Yes²⁰ $2400 annual tax credit per child (food or formula) Yes¹

California SB 148/Jan. 99 Yes Yes No ² Yes ³ Yes No No No

Colorado HB 01-1156/June 01 Yes No No Yes Yes Yes NA Formula age limit: 21 for males, 35 for females. Food limitations: None.

Connecticut HB 7040/Oct. 97,
SB 524/Oct. 01 Yes Yes No Yes Yes Select No No

Delaware SB 78/July 08 Yes Yes Yes No Yes ? Women through child bearing age, Men to age 21.

Florida HB 853/May 95 Yes⁴ Yes⁴ Yes⁵ Yes Yes Select $2,500 24

Georgia Yes

Hawaii HB 326/Jan 99 Yes Yes No Yes Yes Yes⁶ No No

Idaho IDAPA 16.02.26 / July 97 Yes No Yes Not mandated, some cover. Medicaid covers. Yes No No No

Illinois Yes No Yes No Yes Yes NA No

Indiana No No Yes ⁷ No⁸ NA NA NA NA

Iowa Yes No based on income some Yes ? No No

Kansas HB 2255/April 97 Yes Yes No No Yes MSUD $1,500 ⁹ 18

Kentucky HB 395/April 02 Yes Yes Yes Yes Yes All $4,000¹⁰ No

Louisiana Act 1013/Jan 01 Yes ¹⁷ Yes ¹⁷ Yes Yes Yes Yes $200/month None

Maine HB 401/Feb 95 Yes Yes No ¹¹ Yes Yes Select $3,000 No

Maryland HB 509/May 95 Yes Yes No Yes Yes Select No No

Massachusetts HB 5622/Nov 93 Yes Yes No Yes Yes Select $2,500 No

Michigan Yes No Yes No Yes ? NA No

Minnesota 256B.0625/? Yes Yes¹² No Yes Yes No No No

Mississippi Yes No Yes ¹³ No Yes No NA 18

Missouri SB1026/June 02 Yes Yes Yes Yes ¹⁴ Yes Yes $5000 for food 6

Montana HB 266/April 99 Yes Yes No Yes Yes Yes No No

Nebraska LB 610/April 98 Yes Yes Yes Yes Yes Select $2,000 No

Nevada AB 394/July 97 Yes Yes Yes Yes Yes Select $2,500 21

New Hampshire HB 1431/Aug 95 Yes Yes Yes Yes Yes Select $1,800 No

New Jersey SB 1887/Dec 97 Yes Yes No Yes Yes All No No

New Mexico HB 0289/July 03 Yes Yes Yes Yes, but limited Yes No NA None

New York AB 352B/1997 Yes Yes No Yes Yes All $2,500 No

North Carolina 130A-125, S.L./July 97 Yes No Yes No Yes All NA No

North Dakota SB 2239,
HB 1012/Aug 01 Yes ¹⁵ Yes Yes ¹⁵ Yes Yes MSUD $3,000 food and formula Yes¹⁵

Ohio Legislation pending Yes No Yes No Yes Homocystinuria NA No

Oklahoma Yes No Yes No Yes Select NA 21

Oregon HB 2388/May 97,
SB74/July 03 Yes Yes No Yes Yes All No No

Pennsylvania SB 7059/Dec 96 Yes No No Yes Yes MSUD/Select NA 21 for males

Rhode Island Yes Yes Yes No Yes ? ? ?

South Carolina Legislation pending Yes No Yes No Yes Select No No

South Dakota SB 89/Mar 92 Yes No No Yes Yes ? NA No

Tennessee HB 165/July 96 Yes No No Yes Yes Select NA No

Texas TX Insurance Code Article 3.79/Sep 89, amended Apr 99 Yes No No Yes Yes No $3500 (formula) No

Utah HB 205/Feb 98 Yes¹⁶ Yes¹⁶ No Yes Yes Select No No

Vermont SB 253/Oct 98 Yes Yes No Yes Yes ? $2,500 No

Virginia HB 0452/March 00 No No¹⁸ No No Yes ? $2,000 18 (but pregnant women any age), College age for food.

Washington Yes No Yes No Yes Select NA No

West Virginia Yes No Yes No Yes Galactosemia NA No

Wisconsin Act 157/Mar 83 Yes Yes Yes No Yes Yes No No